Tuesday, December 11, 2007
Christmas party
A friend of ours is having a Christmas party this weekend because my parents will be in Milwaukee. He has graciously asked me to extend an invitation on this blog to anyone interested in coming. Our friend is hoping that some people who may not have another chance to visit with my dad over the holiday season might come. Please email me for all the details.
Monday, December 3, 2007
Pumpkin Patch Festival
Mom, Tilly and Dad
Mom, Dad and Family
(from left to right) Mark, Kyle, Rhys, Michael, Mom, Tilly, Dad, Muriel, Michelle and Sunny
Pumpkin Patch Group
October 2007
October 2007
Above are pictures taken on the land in Door County in fall. Included is a picture of the LARGE group of family and friend that my parents hosted for the Pumpkin Patch Festival. Don't worry most of these people were not staying in the house, but they were all staying on my parents 14.5 acres that the house is on! There were 18 adults, 13 children and 6 dogs. Everyone had a great time, and the weather was very warm.
Thanks to Katie's friend Jon for being the group's photographer.
Saturday, October 27, 2007
Dad has "exploded" out of depression
My mom reports that my dad is doing fantastic. My Aunt Mary wonders if maybe he can be turned down a bit. From my mom's report it sounds like he is involved in life again. My dad back to arguing with my mom, complaining about things, driving all over, and planning activities. Before the new medication, he was just watching life go by from the sidelines. If you call him now, don't be surprised if he talks your ear off!
I talked to both my dad and mom by phone over the weekend. When my dad called me on Friday, he was very emotional. He wanted to let me know he had received a response from the National Personnel Records Center (NPRC) to his request for his dad's military records. My dad specifically asked which medals were awarded to his dad.
My paternal grandfather was a World War II Veteran. The NPRC letter states that my grandpa earned several awards. These included a Bronze Star Medal, a Purple Heart, a European-African-Middle Eastern Campaign Medal, American Campaign Medal, Combat Infantryman Badge, World War II Victory Medal, and an Honorable Service lapel pin. My dad is very proud of his father's service to his country.
My grandpa enlisted in the Army Air Corps in California ten days after the bombing of Pearl Harbor. Later, he somehow ended up in the infantry and fought in combat in Europe. The military records detailing my grandpa's actions and whereabouts were unfortunately lost in the 1973 fire at the NPRC. Near the end of the war in Germany, he was shot in the knee by a German soldier. In a letter describing the incident my grandpa wrote that the soldier was possibly SS.
My dad is also interested in whether there could be a link between his three different cancers and his father's military service. My grandpa was in the military when my dad was conceived. My dad is wondering if there was possibly a chemical his dad was exposed to or a medication his dad may have taken that could have contributed to my dad's cancers. Medical records are among those records destroyed in the fire.
Oh, I almost forgot to mention that my dad hasn't vomited since the stent was put in!
I talked to both my dad and mom by phone over the weekend. When my dad called me on Friday, he was very emotional. He wanted to let me know he had received a response from the National Personnel Records Center (NPRC) to his request for his dad's military records. My dad specifically asked which medals were awarded to his dad.
My paternal grandfather was a World War II Veteran. The NPRC letter states that my grandpa earned several awards. These included a Bronze Star Medal, a Purple Heart, a European-African-Middle Eastern Campaign Medal, American Campaign Medal, Combat Infantryman Badge, World War II Victory Medal, and an Honorable Service lapel pin. My dad is very proud of his father's service to his country.
My grandpa enlisted in the Army Air Corps in California ten days after the bombing of Pearl Harbor. Later, he somehow ended up in the infantry and fought in combat in Europe. The military records detailing my grandpa's actions and whereabouts were unfortunately lost in the 1973 fire at the NPRC. Near the end of the war in Germany, he was shot in the knee by a German soldier. In a letter describing the incident my grandpa wrote that the soldier was possibly SS.
My dad is also interested in whether there could be a link between his three different cancers and his father's military service. My grandpa was in the military when my dad was conceived. My dad is wondering if there was possibly a chemical his dad was exposed to or a medication his dad may have taken that could have contributed to my dad's cancers. Medical records are among those records destroyed in the fire.
Oh, I almost forgot to mention that my dad hasn't vomited since the stent was put in!
Thursday, October 25, 2007
Good news from the head CT
The CT scan of my dad's head showed no tumors. Some of you already joked that you didn't need a CT to prove there was nothing in his head! We appreciate the humor.
His medications have been changed to increase his appetite and lift his mood. Everyone is hoping for good results soon.
Please don't hesitate to call, email, or send a card. My dad enjoys hearing from his family and friends. If you don't have an email address for him, just send your message to me at the link to the right (in "About Me"). Put "Please forward to Phil" in the subject line, and I'll make sure he gets it.
I really love all the little notes and stories I've been sent about my dad from those of you reading the blog. Thanks! They surely help me remember better times when he is feeling down.
The finished staircase was installed in the Door County house early this week. My dad says it is just beautiful and that the pictures don't do it justice. Well, here are two pictures anyway for those of you who can't make the trip.
His medications have been changed to increase his appetite and lift his mood. Everyone is hoping for good results soon.
Please don't hesitate to call, email, or send a card. My dad enjoys hearing from his family and friends. If you don't have an email address for him, just send your message to me at the link to the right (in "About Me"). Put "Please forward to Phil" in the subject line, and I'll make sure he gets it.
I really love all the little notes and stories I've been sent about my dad from those of you reading the blog. Thanks! They surely help me remember better times when he is feeling down.
The finished staircase was installed in the Door County house early this week. My dad says it is just beautiful and that the pictures don't do it justice. Well, here are two pictures anyway for those of you who can't make the trip.
Friday, October 19, 2007
What's in Phil's head?
Well, yesterday my dad had a follow-up appointment with Dr. Ritch. He also saw Mary Jo, the psychiatric nurse practitioner. Although physically my dad is feeling fairly well, psychologically he has been extremely depressed. He has been taking an antidepressant medication since he was initially diagnosed. However, following each episode of vomiting, my dad became physically weaker and psychologically more depressed.
Because the symptoms of depression are similar to the symptoms of a brain tumor, an MRI of the brain was suggested to rule out the possibility of a tumor.
As with many well laid plans, this didn't work out. The recently placed stent is stainless steel. Because an MRI scanner uses a large magnet, the magnet could move a newly placed stent like my dad's. (After time, my dad's body will grow around the stent and secure it in place.) So, for now a CT scan of my dad's head was done instead.
The results should be available soon. This scan was done simply as a precaution, so Mary Jo knows that what she is treating is depression.
Also, Dr. Ritch restarted the chemotherapy on Thursday. My dad is back on the biweekly schedule.
My kids and I were able to spend almost half of the last two weeks in Door County with my parents. In two separate trips we were able to enjoy the changing weather of fall in Wisconsin. For the first trip we were joined by Mark and Michael along with many, many other family and friends.
The kids and I enjoyed the time in Door County. The house in Door County sits on 14.5 acres of wooded land. Before the house was built, a tree house was constructed there. Rhys, Muriel and Kyle enjoyed playing in the tree house, hiking the trails and building with Legos while they were there. I played with the kids and our dog, talked to my mom and worked on my latest knitting projects.
It was relaxing to be there, but I was saddened to see my dad so hopeless. I know there is so much more he could share with us. It is not time for him to go yet. When he dies, he will take with him stories and knowledge that will be missed. We can't possible collect all of this information from him. When I want to know about the history of Milwaukee, I will miss him. When I can't remember a detail from my childhood, I will miss him. When I have a question about something he worked on in my house, I will miss him. When I wonder about my paternal ancestors, I will miss him.
I don't want to sit for hours and extract information from him. I wouldn't remember it anyway. I simply want to enjoy the time we have left together. Hopefully, he will feel better soon. I know he will die, but for now I want us to get back to living each day as fully as we can. We don't know how much time is left.
Because the symptoms of depression are similar to the symptoms of a brain tumor, an MRI of the brain was suggested to rule out the possibility of a tumor.
As with many well laid plans, this didn't work out. The recently placed stent is stainless steel. Because an MRI scanner uses a large magnet, the magnet could move a newly placed stent like my dad's. (After time, my dad's body will grow around the stent and secure it in place.) So, for now a CT scan of my dad's head was done instead.
The results should be available soon. This scan was done simply as a precaution, so Mary Jo knows that what she is treating is depression.
Also, Dr. Ritch restarted the chemotherapy on Thursday. My dad is back on the biweekly schedule.
My kids and I were able to spend almost half of the last two weeks in Door County with my parents. In two separate trips we were able to enjoy the changing weather of fall in Wisconsin. For the first trip we were joined by Mark and Michael along with many, many other family and friends.
The kids and I enjoyed the time in Door County. The house in Door County sits on 14.5 acres of wooded land. Before the house was built, a tree house was constructed there. Rhys, Muriel and Kyle enjoyed playing in the tree house, hiking the trails and building with Legos while they were there. I played with the kids and our dog, talked to my mom and worked on my latest knitting projects.
It was relaxing to be there, but I was saddened to see my dad so hopeless. I know there is so much more he could share with us. It is not time for him to go yet. When he dies, he will take with him stories and knowledge that will be missed. We can't possible collect all of this information from him. When I want to know about the history of Milwaukee, I will miss him. When I can't remember a detail from my childhood, I will miss him. When I have a question about something he worked on in my house, I will miss him. When I wonder about my paternal ancestors, I will miss him.
I don't want to sit for hours and extract information from him. I wouldn't remember it anyway. I simply want to enjoy the time we have left together. Hopefully, he will feel better soon. I know he will die, but for now I want us to get back to living each day as fully as we can. We don't know how much time is left.
Friday, October 5, 2007
The stent is in
I just saw my dad. He looked groggy from the procedure, but the stent is in place.
Back at the end of December when my dad first started vomiting, the doctors thought there was a blockage in the gastrointestinal tract. However, doctors can't see the whole GI tract even when they use both an upper GI scope (EGD) and a lower GI scope (colonoscopy). Both procedures were done on my dad in late December and early January to diagnose the cause of his vomiting and diarrhea. He also had a CT scan done at that time which showed the suggestion of a blockage.
The CT scan from yesterday showed a narrowing in the GI tract. The narrowing is what is believed to be the cause of my dad's vomiting. It is in this area of the gastrointestinal tract that cannot be seen with either scope that my dad has a narrowing. So, Dr. Dua had to be a little creative to get the stent in. He connected a wire to the stent and, therefore, was able to extend the reach of the scope to get the stent in the proper place.
Back at the end of December when my dad first started vomiting, the doctors thought there was a blockage in the gastrointestinal tract. However, doctors can't see the whole GI tract even when they use both an upper GI scope (EGD) and a lower GI scope (colonoscopy). Both procedures were done on my dad in late December and early January to diagnose the cause of his vomiting and diarrhea. He also had a CT scan done at that time which showed the suggestion of a blockage.
The CT scan from yesterday showed a narrowing in the GI tract. The narrowing is what is believed to be the cause of my dad's vomiting. It is in this area of the gastrointestinal tract that cannot be seen with either scope that my dad has a narrowing. So, Dr. Dua had to be a little creative to get the stent in. He connected a wire to the stent and, therefore, was able to extend the reach of the scope to get the stent in the proper place.
Thursday, October 4, 2007
Pictures from the riverboat trip
Here are some pictures from the Mississippi Riverboat trip in June. These are pictures Michael asked me to post, so I am happy to oblige.
My dad sliding down the waterslide on the back of our boat while Michael and Mark are jumping off the top deck. You can unfortunately only see Mark's arm. (Actually, my brother picked another picture to include, but I like this one better.)
My dad, Muriel and Kyle "holding up one of the bridges". This was my dad's idea, and the kids enjoyed playing along.
Finally, my dad is finishing up a John Grisham book on the beach.
My dad sliding down the waterslide on the back of our boat while Michael and Mark are jumping off the top deck. You can unfortunately only see Mark's arm. (Actually, my brother picked another picture to include, but I like this one better.) 
My dad, Muriel and Kyle "holding up one of the bridges". This was my dad's idea, and the kids enjoyed playing along. 
Finally, my dad is finishing up a John Grisham book on the beach.
A stent enters the picture
I was at the doctor's appointment today with my parents. Many changes are taking place in my dad's treatment.
The CT scan showed a narrowing of the lower portion of the duodenum. (See the diagram below.) The narrowing is caused by the tumor in the pancreas placing pressure on that portion of the digestive tract.
Dr. Ritch set my dad up to have a stent put in tomorrow morning. A stent is a small plastic or metal tube that will keep the duodenum open. It will be done as an outpatient procedure using a GI scope, so no incision! This procedure will be performed by Dr. Kulwinder Dua. Dr Dua was Dr. Ritch's first and only choice to perform this procedure on my dad.
Also, the chemotherapy treatment for today was cancelled. Dr. Ritch wants to wait and see how thing go; then he'll decide about restarting the gemcitabine (chemotherapy drug) or going to another alternative.
I am very hopefully that this stent will improve my dad's quality of life. Ideally, it will stop the vomiting. It is also possible that the stent would enable my dad to eat without "feeling full" on small amounts of food.
The CT scan showed a narrowing of the lower portion of the duodenum. (See the diagram below.) The narrowing is caused by the tumor in the pancreas placing pressure on that portion of the digestive tract.
Dr. Ritch set my dad up to have a stent put in tomorrow morning. A stent is a small plastic or metal tube that will keep the duodenum open. It will be done as an outpatient procedure using a GI scope, so no incision! This procedure will be performed by Dr. Kulwinder Dua. Dr Dua was Dr. Ritch's first and only choice to perform this procedure on my dad.
Also, the chemotherapy treatment for today was cancelled. Dr. Ritch wants to wait and see how thing go; then he'll decide about restarting the gemcitabine (chemotherapy drug) or going to another alternative.
I am very hopefully that this stent will improve my dad's quality of life. Ideally, it will stop the vomiting. It is also possible that the stent would enable my dad to eat without "feeling full" on small amounts of food.
Wednesday, October 3, 2007
The see-saw continues
Last night (Tuesday) my parents came back from Door County. My dad has an appointment with Dr. Ritch scheduled for tomorrow morning along with a CT scan and a chemotherapy treatment. The CT scan will be used this time to try to determine what is causing my dad's vomiting, so we can better manage that symptom.
Unfortunately, my dad has started vomiting again this evening. Hopefully, this bout will be short. More news tomorrow.
Unfortunately, my dad has started vomiting again this evening. Hopefully, this bout will be short. More news tomorrow.
Saturday, September 29, 2007
A new day
After getting a full night's sleep (plus a couple of extra hours), my parents had a very good day today. My dad's mood has improved considerably. My mom first noticed an improvement in my dad's attitude after he talked to my brother and I last night. He has not vomited today and, thus, was able to keep some food down.
There are weeks where I lose track of the days. For me this has been one of those weeks. While listening to the clock radio Friday morning, I was confused about why there was a Friday only program on. It took many minutes before I realized that it was actually Friday.
I have shared with some people how this has affected my memory. Schedules and names have suffered the most. However, I have recently noticed an improvement. I no longer have the chronic feeling that I'm missing a scheduled appointment, event or activity.
The journey is by no means over, though. We are proceeding on this path. Along the route, we must sometimes make decisions about when to move mountains and when not to. Often without even realizing it, others have moved mountains to make things happen for us. Sometimes these people are strangers or people we hardly know, but most times it is an extended family member or a family friend. My family and I are extremely blessed to have such generous and caring people in our lives. Thank you.
There are weeks where I lose track of the days. For me this has been one of those weeks. While listening to the clock radio Friday morning, I was confused about why there was a Friday only program on. It took many minutes before I realized that it was actually Friday.
I have shared with some people how this has affected my memory. Schedules and names have suffered the most. However, I have recently noticed an improvement. I no longer have the chronic feeling that I'm missing a scheduled appointment, event or activity.
The journey is by no means over, though. We are proceeding on this path. Along the route, we must sometimes make decisions about when to move mountains and when not to. Often without even realizing it, others have moved mountains to make things happen for us. Sometimes these people are strangers or people we hardly know, but most times it is an extended family member or a family friend. My family and I are extremely blessed to have such generous and caring people in our lives. Thank you.
Friday, September 28, 2007
"A see-saw battle"
I just talked to my dad on the phone. After feeling better yesterday, he is vomiting again today. It is very discouraging for him, and he described it as "a see-saw battle". I reminded him that he went through this after Christmas and eventually got better. I told him that it took a while that time, too. Hopefully, things will turn around soon. It is hard to see his spirits so down.
My mom has talked to Dr. Ritch who ordered some additional medications to try to get the vomiting to stop. Dr. Ritch also mentioned using an nasogastric (NG) tube to empty the stomach. My dad had an NG tube last time he was admitted to the hospital. He hated it, so Dr. Ritch and my parents are exploring other options.
On Thursday my dad has an appointment with Dr. Ritch. Hopefully, Dr. Ritch and his team at the cancer center will have some new ideas to keep my dad comfortable.
My mom has talked to Dr. Ritch who ordered some additional medications to try to get the vomiting to stop. Dr. Ritch also mentioned using an nasogastric (NG) tube to empty the stomach. My dad had an NG tube last time he was admitted to the hospital. He hated it, so Dr. Ritch and my parents are exploring other options.
On Thursday my dad has an appointment with Dr. Ritch. Hopefully, Dr. Ritch and his team at the cancer center will have some new ideas to keep my dad comfortable.
Wednesday, September 26, 2007
Wishing for better news
This morning I talked to my dad on the phone. He was feeling better, but tired. However, in the email I just received from my mom she writes that my dad has started throwing up again. My mom has started another IV of fluids. Please continue to pray. Hopefully, tomorrow will bring better news.
Thanks for continuing to read this blog. My family and I appreciate having so many people take the time to check the blog and keep up with my dad's progress. A special thank you to those of you who have left comments on the blog, visited my dad in the hospital or call him on the phone. That includes our family friend Allen Miller who is using the alias "Mr. Buquerque" in his blog comment! (For those of you wondering who "Mr. Buquerque" was.)
Thanks for continuing to read this blog. My family and I appreciate having so many people take the time to check the blog and keep up with my dad's progress. A special thank you to those of you who have left comments on the blog, visited my dad in the hospital or call him on the phone. That includes our family friend Allen Miller who is using the alias "Mr. Buquerque" in his blog comment! (For those of you wondering who "Mr. Buquerque" was.)
Tuesday, September 25, 2007
More IV fluids
My mom started running IV fluids into my dad this morning (Tuesday) because he is vomitting again. I'll talk to my mom in the morning and hopefully give a more thorough update tomorrow. We are hoping it will turn around quickly, and he stays out of the hospital.
Monday, September 17, 2007
Soccer hits another shoulder
For several years my dad was a soccer coach. He was also a soccer player. He played in an adult league for a short time, but he injured his shoulder. The shoulder injury required surgery. Following unfortunately in his grandfather's footsteps, Rhys has injured his shoulder playing soccer. On Saturday (at the opening game of the season) Rhys broke his collar bone. Although he doesn't need surgery, Rhys must wear an immobilizer for a minimum of three weeks!
However, back in July Rhys and my dad enjoyed some time fishing. Once they went out on Lake Michigan and another time they fished in the waters of Green Bay. Some camping friends took the two of them out, and they caught five salmon! Rhys caught the biggest one because he stole it from Grandpa. Rhys says that Grandpa gave him the pole. Also, Rhys says not to forget about the "quick and the dead". My dad has many often used sayings. Some of these saying are more colorful than others. But, by far the most commonly used is "the first rule of basic bayonette training: there are two kinds of people in the world - the quick and the dead". This is Rhys's defense. Grandpa must be so proud!
However, back in July Rhys and my dad enjoyed some time fishing. Once they went out on Lake Michigan and another time they fished in the waters of Green Bay. Some camping friends took the two of them out, and they caught five salmon! Rhys caught the biggest one because he stole it from Grandpa. Rhys says that Grandpa gave him the pole. Also, Rhys says not to forget about the "quick and the dead". My dad has many often used sayings. Some of these saying are more colorful than others. But, by far the most commonly used is "the first rule of basic bayonette training: there are two kinds of people in the world - the quick and the dead". This is Rhys's defense. Grandpa must be so proud!
Friday, September 14, 2007
Time in Door County
My parents are enjoying their time at home in Door County. They have had a couple of dinners with friends and went golfing. They continue to work on a variety of projects inside and outside the house there.
Next month marks 13 years my parents have owned the land in Door County. One of the first projects they undertook was building a series of short hiking trails through the 15 acres. They have cleared trees and moved rocks. Maintenance on these trails is an ongoing project that my parents have enjoyed tackling all these years. In a recent storm several trees fell over the hiking trails. My dad cut the trees and my mom moved them off the trail. Rhys enjoyed watching and helping Grandpa with this work so much that my parents got him his own set of earplugs!
Muriel and my dad finished up their quilting class as scheduled last Thursday. The quilt was recovered by our friend Kim. She drove four hours up to Door County with her three small children to get the quilt. That got it as far as Oshkosh (a little more than half way). My family and I drove to Oshkosh to get it. While in Oshkosh, Kim treated us all to a homecooked dinner, too! Many, many thanks to Kim for helping. Also, thanks to her kids for an extra measure of patience to sit for four hours in the car.
Muriel enjoyed picking out fabrics for the quilt including a navy fabric that sparkles with lots of glitter. She also liked piecing the quilt together, but doesn't enjoy quilting all the layers. The quilt she is working on is a checkerboard (complete with checkers).
Next month marks 13 years my parents have owned the land in Door County. One of the first projects they undertook was building a series of short hiking trails through the 15 acres. They have cleared trees and moved rocks. Maintenance on these trails is an ongoing project that my parents have enjoyed tackling all these years. In a recent storm several trees fell over the hiking trails. My dad cut the trees and my mom moved them off the trail. Rhys enjoyed watching and helping Grandpa with this work so much that my parents got him his own set of earplugs!
Muriel and my dad finished up their quilting class as scheduled last Thursday. The quilt was recovered by our friend Kim. She drove four hours up to Door County with her three small children to get the quilt. That got it as far as Oshkosh (a little more than half way). My family and I drove to Oshkosh to get it. While in Oshkosh, Kim treated us all to a homecooked dinner, too! Many, many thanks to Kim for helping. Also, thanks to her kids for an extra measure of patience to sit for four hours in the car.
Muriel enjoyed picking out fabrics for the quilt including a navy fabric that sparkles with lots of glitter. She also liked piecing the quilt together, but doesn't enjoy quilting all the layers. The quilt she is working on is a checkerboard (complete with checkers).
Wednesday, September 5, 2007
Home again (almost)
Today my dad will be sprung from the hospital. He'll have a chemotherapy treatment tomorrow. After tomorrow, he'll finally be able to get back home to Door County.Muriel and my dad were scheduled to take the last of their two part "Me and My Adult" quilting class tomorrow, but the quilt was mistakenly left in Door County. Hopefully, we'll get this problem worked out without too much trouble. When the quilt is finished, I hope to get a picture of it up on the blog.
Muriel is using our sewing machine to put her quilt together. My dad took a quilting class in Indianapolis when he was working there. That class was about ten years ago; the same time Muriel was born. The quilt he did was a wall hanging sampler done completely by hand! It now hangs in the dining room in Door County.
Below I have included a recent picture of my dad. This photo was taken in the Department of Natural Resources (DNR) Exhibit at the Wisconsin State Fair.
The kids and I have gone to the fair for many years with my parents. We enjoy seeing the animals and the craft entries. My dad especially likes to see the prize winning animals and the prices those animals sold for. Admiring the cake decorating, quilting, knitting, sewing, and other craft entries is one of our favorite parts of the fair. Of course, there are also plenty of displays and activities of interest to us in the DNR exhibit.
Monday, September 3, 2007
Back to the hospital
After spending the weekend with family and friends in Door County, my dad is back in the hospital.
He started vomiting early Sunday morning (9/2). My mom administered a total of two liters of IV fluid on Sunday. We hoped by late in the day Sunday he would have bounced back. In the past the turn around time has been less than 24 hours with these types of incidents.
However, this time he didn't turn around in 24 hours. By Monday afternoon he was still vomiting. My mom made the decision to drive down from Door County and take my dad to the Froedert Emergency Department.
He will be admitted to the hospital.
He started vomiting early Sunday morning (9/2). My mom administered a total of two liters of IV fluid on Sunday. We hoped by late in the day Sunday he would have bounced back. In the past the turn around time has been less than 24 hours with these types of incidents.
However, this time he didn't turn around in 24 hours. By Monday afternoon he was still vomiting. My mom made the decision to drive down from Door County and take my dad to the Froedert Emergency Department.
He will be admitted to the hospital.
Tuesday, July 10, 2007
A set back
My mom sent out the following email on July 10th.
More about the boat trip and hospital stay later, but I wanted to keep everyone up-to-date. You can read about and see pictures of the houseboat at Huck's Houseboat Vacations' website. My mom rented us one from the Royal Series.
Well as you have seen on the blog about Phil we have been very busy. Life has been a world wind the last 6 months. We have seen Florida, Ireland and had the most wonderful of all a family vacation on the Mississippi River in our very own rented 58ft, 4 bedroom, air-conditioned, house boat, complete with a water slide and hot tub.
Phil has been doing very well. The cancer has decreased a little. He now gets chemo two weeks on and two weeks off because that is all his body can tolerate. He has never been able to get any more than that so now he no longer has to go in for the blood test on the third week. This gives us more time in our lovely home in Door County where we spend most of our time.
Phil says and I agree that it is just beautiful and peaceful on the land and the most wonderful place in the world to be. The house is essentially done in our living quarters and livable in the guest quarters. We do a little work and hang out with friends or just sit on the porches the majority of the time. Tilly goes for a lot of walks.
Now for the bad news. Really hit home again on the last day of the boat trip when Phil stopped his diarrhea and started vomiting again. We were able to medicate him and he got through the episode without going to the hospital. He started in the middle of the night on the last day and so he got out of packing and returning the boat in the morning. By the time we
arrived home he was better and started eating and drinking again. The diarrhea came back and all was well with the world.
Then on Sunday (July 8) afternoon he started feeling full again and the diarrhea stopped and he started vomiting again. We medicated him but nothing worked. About 1 PM he finally decided that he needed to go to the hospital. He had lost 7 lb in that 24 hours and we were on our way back (from Door County) to Froedtert hospital where he was admitted last night. He is hoping to get hydrated and be back home today. Thurs is his regular doctors appointment and chemo.
Soon we plan on going camping in the park with our family and friends. He will need to leave and come home for one chemo
treatment.
On a last note. The garage on Stickney has been torn down. No information on when the driveway will be torn out or the new garage built. The driveway in Door County has been prepared and is ready for the asphalt which should be done by the time we get back up there.
More about the boat trip and hospital stay later, but I wanted to keep everyone up-to-date. You can read about and see pictures of the houseboat at Huck's Houseboat Vacations' website. My mom rented us one from the Royal Series.
Friday, June 15, 2007
The chemotherapy schedule changes
After more than a week in Door County, my parents returned for a chemotherapy treatment and appointment with Dr. Ritch. My dad has never had more than two chemotherapy treatments consecutively. For the third treatment he goes in and gets blood drawn, but his blood levels are not high enough for Dr. Ritch to approve a treatment.
Based on that history, Dr. Ritch has decided to change the treatment schedule. The new schedule will be two weeks of treatment followed by two weeks without treatment. (Now my dad doesn't have to show up at the cancer center and have the blood draw on the third week.)
Also, Dr. Ritch is planning to do another CT scan in August. He doesn't feel it is necessary to do another scan any sooner. My dad has to premedicate before every scan because he is allergic to the dye used in the scan. The medication, the dye, or some other part of doing the scan gives my dad a headache for a day afterwards. So, the fewer scans the better in my opinion.
To all dads I wish you a happy Father's Day! Daughters remember to hug your dads this Father's Day. I know I won't miss the chance to hug my dad this Father's Day.
Based on that history, Dr. Ritch has decided to change the treatment schedule. The new schedule will be two weeks of treatment followed by two weeks without treatment. (Now my dad doesn't have to show up at the cancer center and have the blood draw on the third week.)
Also, Dr. Ritch is planning to do another CT scan in August. He doesn't feel it is necessary to do another scan any sooner. My dad has to premedicate before every scan because he is allergic to the dye used in the scan. The medication, the dye, or some other part of doing the scan gives my dad a headache for a day afterwards. So, the fewer scans the better in my opinion.
To all dads I wish you a happy Father's Day! Daughters remember to hug your dads this Father's Day. I know I won't miss the chance to hug my dad this Father's Day.
Tuesday, June 5, 2007
No news is good news
I didn't get around to publishing that last post in a timely manner. I apologize for that. It sat as a draft for almost a month!
No news is been good news though. My dad continues to do fine. He gets tired often and frustrated easily. But, considering what he is facing (leaving my mom, possible pain, ultimately death), I can understand. He is still able to work on projects at both houses. Mostly, he works on the house in Door County and supervises contractors they hire at home. My mom is continuing to work on both houses. To my knowledge his physical symptoms have remained unchanged from before the diagnosis.
My parents spend more than half of their time in Door County. They come home for chemotherapy. Sometimes they stay for a few days, but often they are back to Door County the same day or the next day.
My dad has planted some tomato plants, cantaloupe plants, and daffodil bulbs at the land. He also put in some tomato plants at home. I took him the garden center and bought the plants for him for Father's Day. He also picked out some petunias to plant in Door County.
Mark, the kids, and I made the trip to Door County for Mother's Day and Memorial Day weekends. My brother Michael joined us for Mother's Day weekend and made a wonderful breakfast on Sunday morning. Michael didn't join us for Memorial Day, but there were many other family members and friends that stayed on the land or stopped by to visit. My dad told me he is happy to see the visitors come up the driveway, but also is just as happy to see everyone go back down the driveway!
No news is been good news though. My dad continues to do fine. He gets tired often and frustrated easily. But, considering what he is facing (leaving my mom, possible pain, ultimately death), I can understand. He is still able to work on projects at both houses. Mostly, he works on the house in Door County and supervises contractors they hire at home. My mom is continuing to work on both houses. To my knowledge his physical symptoms have remained unchanged from before the diagnosis.
My parents spend more than half of their time in Door County. They come home for chemotherapy. Sometimes they stay for a few days, but often they are back to Door County the same day or the next day.
My dad has planted some tomato plants, cantaloupe plants, and daffodil bulbs at the land. He also put in some tomato plants at home. I took him the garden center and bought the plants for him for Father's Day. He also picked out some petunias to plant in Door County.
Mark, the kids, and I made the trip to Door County for Mother's Day and Memorial Day weekends. My brother Michael joined us for Mother's Day weekend and made a wonderful breakfast on Sunday morning. Michael didn't join us for Memorial Day, but there were many other family members and friends that stayed on the land or stopped by to visit. My dad told me he is happy to see the visitors come up the driveway, but also is just as happy to see everyone go back down the driveway!
Wednesday, May 9, 2007
Many thanks
Thank you to all the friends and family who have posted comments to the blog. I am encouraged to continue the updates whenever I see a new comment.
My dad is in an off week for chemotherapy. Last week he went to the cancer clinic by himself and had no treatment because of one or more low blood levels. (My dad didn't give me any more details.)
As summer approaches my parents have many trips planned. Some of these trips we will enjoy together. Several days will be spent on a houseboat on the Mississippi in June. My family, my brother and I will be joining them for this trip. Also, there will be several trips to Door County that have become annual events for my parents.
My dad is in an off week for chemotherapy. Last week he went to the cancer clinic by himself and had no treatment because of one or more low blood levels. (My dad didn't give me any more details.)
As summer approaches my parents have many trips planned. Some of these trips we will enjoy together. Several days will be spent on a houseboat on the Mississippi in June. My family, my brother and I will be joining them for this trip. Also, there will be several trips to Door County that have become annual events for my parents.
Tuesday, May 1, 2007
Judy's birthday and glassblowing
A few more notes to update the blog. . .
My mom's birthday was during the Florida trip. We celebrated at my brother's house last Sunday. Happy belated birthday, Mom!
Last Monday, the kids, my parents, and I had an unique opportunity to observe and try glassblowing. The type of glassblowing we did is called lampwork. The demonstration was performed by my friend from our homeschool group, Erich.
Above my dad is creating his masterpiece, a glass bead. Rhys, Kyle and I made glass marbles. My dad's and my creations had to be left behind for later delivery because they were still too hot when we left. We can't wait to see how they turn out. (The colors all look orange when the glass is hot.) Thanks again to Erich for opening up his studio for the day to my family and other homeschoolers.
My mom's birthday was during the Florida trip. We celebrated at my brother's house last Sunday. Happy belated birthday, Mom!
Last Monday, the kids, my parents, and I had an unique opportunity to observe and try glassblowing. The type of glassblowing we did is called lampwork. The demonstration was performed by my friend from our homeschool group, Erich.
Above my dad is creating his masterpiece, a glass bead. Rhys, Kyle and I made glass marbles. My dad's and my creations had to be left behind for later delivery because they were still too hot when we left. We can't wait to see how they turn out. (The colors all look orange when the glass is hot.) Thanks again to Erich for opening up his studio for the day to my family and other homeschoolers.
Wednesday, April 25, 2007
An overdue update
Well, many of you have noted that I have not updated the blog in some time. Some of you know that is because my computer has been broken. On Tuesday the computer was repaired at no cost to me (with a new logic board)!!!
So, here is what you have missed. . .
The second cycle of chemotherapy followed the pattern of the first. The first treatment went well. The second treatment had to be approved by Dr. Ritch because of a borderline platelet count. The third treatment was skipped because my dad's platelets were too low. Of course, in this cycle there were only three treatments scheduled.
My parents went to Door County for a few days before Easter. Rhys was very excited to join them on this trip. He hadn't been to the house since fall and was thrilled with all the new changes.
My family and I all spent Easter together. It was a wonderful day, but I was very sick with a fever, sore throat, and headache. I joked that my dad felt better than I did which was very true. I am finally better although I still have a lingering cough.
After Easter, my dad continued to keep very busy doing taxes for all the last minute clients. I wish I could have helped him, but was too sick to be of any use to him.
On Monday after Easter my mom went to the Milwaukee Catholic Home and resigned her position. With a tearful goodbye to fellow employees, she answered a few questions relating to her job and collected her personal belongings.
The next day my dad was informed of the death of his Aunt Charolette McCauley. My parents had visited Aunt Charolette just before Easter because her health was failing rapidly. The obituary from the Milwaukee Journal Sentinel can be read here. Below is a photograph of Aunt Charolette (on the left) and her daughter, Maureen. The photo was taken at my dad's birthday party in January.
My parents left for a week long trip to visit family and friends in Florida. Being that we live in Wisconsin, it snowed about five inches while they were gone! They enjoyed visits with Enders, Slaytons, Gordons (my dad's sister Francesca and her husband), and others. Alligators, anoles and geckos were prevalent.
While my parents were in Florida, I attended Aunt Charolette's funeral and enjoyed visiting with several of my cousins (one of whom I hadn't seen for about 25 years). I know my dad would have enjoyed visiting with everyone, too. I am glad I was able to attend in spite being ill. I wish I could have provided the above picture to the family for the funeral, but it was trapped inside my broken computer. Hopefully, the McCauley's will enjoy seeing it here.
That about brings everyone up-to-date. My dad continues to feel physically very well. His primary physical symptom is still that annoying diarrhea. There are some minor side effects from the dye when he has a CT scan. The anti-depressant medication helps to keep his mood more upbeat, so we are all pleased about that.
So, here is what you have missed. . .
The second cycle of chemotherapy followed the pattern of the first. The first treatment went well. The second treatment had to be approved by Dr. Ritch because of a borderline platelet count. The third treatment was skipped because my dad's platelets were too low. Of course, in this cycle there were only three treatments scheduled.
My parents went to Door County for a few days before Easter. Rhys was very excited to join them on this trip. He hadn't been to the house since fall and was thrilled with all the new changes.
My family and I all spent Easter together. It was a wonderful day, but I was very sick with a fever, sore throat, and headache. I joked that my dad felt better than I did which was very true. I am finally better although I still have a lingering cough.
After Easter, my dad continued to keep very busy doing taxes for all the last minute clients. I wish I could have helped him, but was too sick to be of any use to him.
On Monday after Easter my mom went to the Milwaukee Catholic Home and resigned her position. With a tearful goodbye to fellow employees, she answered a few questions relating to her job and collected her personal belongings.
The next day my dad was informed of the death of his Aunt Charolette McCauley. My parents had visited Aunt Charolette just before Easter because her health was failing rapidly. The obituary from the Milwaukee Journal Sentinel can be read here. Below is a photograph of Aunt Charolette (on the left) and her daughter, Maureen. The photo was taken at my dad's birthday party in January.
My parents left for a week long trip to visit family and friends in Florida. Being that we live in Wisconsin, it snowed about five inches while they were gone! They enjoyed visits with Enders, Slaytons, Gordons (my dad's sister Francesca and her husband), and others. Alligators, anoles and geckos were prevalent.
While my parents were in Florida, I attended Aunt Charolette's funeral and enjoyed visiting with several of my cousins (one of whom I hadn't seen for about 25 years). I know my dad would have enjoyed visiting with everyone, too. I am glad I was able to attend in spite being ill. I wish I could have provided the above picture to the family for the funeral, but it was trapped inside my broken computer. Hopefully, the McCauley's will enjoy seeing it here.
That about brings everyone up-to-date. My dad continues to feel physically very well. His primary physical symptom is still that annoying diarrhea. There are some minor side effects from the dye when he has a CT scan. The anti-depressant medication helps to keep his mood more upbeat, so we are all pleased about that.
Thursday, March 22, 2007
Tuesday, March 20, 2007
Shrinking tumor!
Kyle and I went to the Froedtert & the Medical College of Wisconsin Cancer Center with my parents today. This is where my dad has oncology appointments and receives treatments. We saw Dr. Ritch, and my dad had a chemotherapy treatment.
After having four treatments out of a scheduled seven, the CT scan showed some shrinkage of the tumor mass in the body and tail of the pancreas!!! No cancer was seen on the CT scan in the abdomen or lungs. There can be cancer in these areas that doesn't show up on a CT scan. However, it is still better to not see cancer in these areas on the CT scan than to have them show up with cancer.
Also, the blood test used to monitor patients with pancreatic cancer had favorable results. My dad's level in January was about 4500; the result from Friday's test was 1162! More information about this test called the CA 19-9 Radioimmunoassay test is available on the PanCAN Website.
Dr Ritch said this is "very good news" especially considering my dad only had about half of the scheduled treatments! Unfortunately, we don't know how long the tumor will continue to respond to the treatments.
As was anticipated, chemotherapy treatments will now follow a three weeks on followed by one week off schedule. CT scans will be done after every two cycles. The treatments will still be once per week.
Chemotherapy days follow a usual pattern and take the whole morning. Blood draws are done first. Chemotherapy treatment is last. In the middle there is much waiting. Sometimes my dad has other appointments scheduled at the clinic. These occupy some of the waiting time. My dad may see Mary Jo (the psychiatric nurse practitioner), Dr. Ritch (the oncologist) or the rabbi (the rabbi). Mary Jo manages my dad's "psychedelic drugs" as he likes to call the antidepressant medication. Dr. Ritch monitors the cancer and manages the chemotherapy treatments. The rabbi provides spiritual care.
My family appreciates all of your prayers thus far. Keep up the good work! Also, I have a request: post a comment. My parents don't understand how many of you are reading this blog to keep up on his progress. Please post a comment to let them know you've been reading the blog, thinking about them, or praying. Thanks.
p.s. My dad's weight is up to 136 pounds from a low of 127. More good news. :-)
After having four treatments out of a scheduled seven, the CT scan showed some shrinkage of the tumor mass in the body and tail of the pancreas!!! No cancer was seen on the CT scan in the abdomen or lungs. There can be cancer in these areas that doesn't show up on a CT scan. However, it is still better to not see cancer in these areas on the CT scan than to have them show up with cancer.
Also, the blood test used to monitor patients with pancreatic cancer had favorable results. My dad's level in January was about 4500; the result from Friday's test was 1162! More information about this test called the CA 19-9 Radioimmunoassay test is available on the PanCAN Website.
Dr Ritch said this is "very good news" especially considering my dad only had about half of the scheduled treatments! Unfortunately, we don't know how long the tumor will continue to respond to the treatments.
As was anticipated, chemotherapy treatments will now follow a three weeks on followed by one week off schedule. CT scans will be done after every two cycles. The treatments will still be once per week.
Chemotherapy days follow a usual pattern and take the whole morning. Blood draws are done first. Chemotherapy treatment is last. In the middle there is much waiting. Sometimes my dad has other appointments scheduled at the clinic. These occupy some of the waiting time. My dad may see Mary Jo (the psychiatric nurse practitioner), Dr. Ritch (the oncologist) or the rabbi (the rabbi). Mary Jo manages my dad's "psychedelic drugs" as he likes to call the antidepressant medication. Dr. Ritch monitors the cancer and manages the chemotherapy treatments. The rabbi provides spiritual care.
My family appreciates all of your prayers thus far. Keep up the good work! Also, I have a request: post a comment. My parents don't understand how many of you are reading this blog to keep up on his progress. Please post a comment to let them know you've been reading the blog, thinking about them, or praying. Thanks.
p.s. My dad's weight is up to 136 pounds from a low of 127. More good news. :-)
Monday, March 19, 2007
St. Patrick's Day
The arrival of St. Patrick's Day always reminds me of walking home from grade school in the warm spring breeze. This year my family (including my parents, brother, aunts, uncles, and cousins) celebrated the holiday in a especially nice way. My cousin was married on St. Patrick's Day.
Below is a picture from the wedding. This was during the "generation dance" where married couples dance until the number of years they have been married is called by the DJ. When your number is called, you are supposed to leave the dance floor. (Hint, hint, Greg and Darcy!) My parents along with two of my mom's siblings and their spouses were among the final dancers. Shown in the picture from left to right are my mom, my aunt Mary, my dad, and my uncle John. (Originally they were dancing with their respective spouses, but traded partners for the picture!)
Below is a picture from the wedding. This was during the "generation dance" where married couples dance until the number of years they have been married is called by the DJ. When your number is called, you are supposed to leave the dance floor. (Hint, hint, Greg and Darcy!) My parents along with two of my mom's siblings and their spouses were among the final dancers. Shown in the picture from left to right are my mom, my aunt Mary, my dad, and my uncle John. (Originally they were dancing with their respective spouses, but traded partners for the picture!)
Sunday, March 18, 2007
Spring has arrived
I think spring has arrived! Most of the snow has finally melted, and the temperatures are warming up. In addition to the season, other changes are taking place. My parents changed countries (temporarily). The chemotherapy schedule is changing. Lastly, the house is Door County is changing.
My mom and dad have returned after a week long trip to Ireland. My brother and one of my brother's friends were able to accompany my parents at the last minute. They all had a wonderful time. Below is my mom's summary of the trip.
Ireland was great. We stayed in Castledaly Manor. It is an old manor in the middle of Ireland. The manor has a pub and a restaurant in it also.
Michael and one of his buddies came along with us. We went on tours every day. We saw many castles and churches. We saw many small towns and many pubs. We ate here, there and everywhere. We were in Dublin and Galway. We saw the Cliffs of Moher and the Clonmachnois.
Most days we got up in the morning and headed out. After an hour or so, we stopped in a small town and took a potty break at a local pub. Then, we would go to lunch which many times we had at a pub. On the way home we would stop in another town and would go into a pub. When we got back, we would spend the evening in the pub.
All of Ireland is nonsmoking so it was very nice to sit and eat and socialize in the pubs. The people in Ireland were very friendly. We did some shopping, and Phil went with the boys on a pub crawl one night. Many of the pubs had music and on the last night the pub at the manor has music and Irish dancers.
Phil felt fine and had no problems. We had a great trip and have many stories to tell. We came home Thursday at about 7pm.
My dad had a CT scan and blood work done on Friday after the trip. My parents have appointments to see the psychiatric nurse practitioner on Monday and Dr. Ritch, the oncologist, on Tuesday. My dad hasn't had chemotherapy since before the trip, but he should resume treatments again on Tuesday. The results of the third CT scan are also expected that day.
Also, my parents are planning another trip to Door County before Easter. The floor is done, so they can start moving furniture into the upstairs. The refrigerator, stove, and combination washer/dryer have been ordered and will be delivered soon. My dad and mom are excited.
My mom and dad have returned after a week long trip to Ireland. My brother and one of my brother's friends were able to accompany my parents at the last minute. They all had a wonderful time. Below is my mom's summary of the trip.
Ireland was great. We stayed in Castledaly Manor. It is an old manor in the middle of Ireland. The manor has a pub and a restaurant in it also.
Michael and one of his buddies came along with us. We went on tours every day. We saw many castles and churches. We saw many small towns and many pubs. We ate here, there and everywhere. We were in Dublin and Galway. We saw the Cliffs of Moher and the Clonmachnois.
Most days we got up in the morning and headed out. After an hour or so, we stopped in a small town and took a potty break at a local pub. Then, we would go to lunch which many times we had at a pub. On the way home we would stop in another town and would go into a pub. When we got back, we would spend the evening in the pub.
All of Ireland is nonsmoking so it was very nice to sit and eat and socialize in the pubs. The people in Ireland were very friendly. We did some shopping, and Phil went with the boys on a pub crawl one night. Many of the pubs had music and on the last night the pub at the manor has music and Irish dancers.
Phil felt fine and had no problems. We had a great trip and have many stories to tell. We came home Thursday at about 7pm.
My dad had a CT scan and blood work done on Friday after the trip. My parents have appointments to see the psychiatric nurse practitioner on Monday and Dr. Ritch, the oncologist, on Tuesday. My dad hasn't had chemotherapy since before the trip, but he should resume treatments again on Tuesday. The results of the third CT scan are also expected that day.
Also, my parents are planning another trip to Door County before Easter. The floor is done, so they can start moving furniture into the upstairs. The refrigerator, stove, and combination washer/dryer have been ordered and will be delivered soon. My dad and mom are excited.
Saturday, March 10, 2007
Ireland
My parent are fulfilling a lifelong dream. They are in Ireland. Both my mom and my dad have Irish ancestry. My mom sent the following email from Ireland.
Having a great time. Weather is cool and on and off rain, but not stopping any activity. Feeding us well. Very interesting. The plane trip went without a problem.
I have seen many shades of green. The land is much different than home, but it is also many times like home. The exception: they do not have snow. The people are friendly and helpful. The Irish are building new homes and commercial buildings all over the place in small towns and big cities.
See you soon unless the leprechauns hold us.
Having a great time. Weather is cool and on and off rain, but not stopping any activity. Feeding us well. Very interesting. The plane trip went without a problem.
I have seen many shades of green. The land is much different than home, but it is also many times like home. The exception: they do not have snow. The people are friendly and helpful. The Irish are building new homes and commercial buildings all over the place in small towns and big cities.
See you soon unless the leprechauns hold us.
Friday, March 9, 2007
Packing up at Rexnord
My dad, Rhys, and I went to Rexnord on Tuesday. After more than 30 years working there, my dad packed up his personal things. Among the things my dad packed was a piece of artwork with Michael's handprint. I am guessing it was made in kindergarten. A birthday card I made him with pressed Door County flowers and a school picture of me was also there. It was dated 1983. A photograph of Rhys when he was a baby brought tears to my dad's eyes.
I fondly remember when I was a child going into work with my dad on Saturday mornings. Sometimes Michael and I would get to make IBM punchcards with our names or other personalized sayings on them. My other childhood memory of Rexnord is of a big room with lots of machines "playing" tapes. They looked like giant reel-to-reel players. Computers sure were different in the late 70's!
I fondly remember when I was a child going into work with my dad on Saturday mornings. Sometimes Michael and I would get to make IBM punchcards with our names or other personalized sayings on them. My other childhood memory of Rexnord is of a big room with lots of machines "playing" tapes. They looked like giant reel-to-reel players. Computers sure were different in the late 70's!
Thursday, March 8, 2007
Zamboni Ride
At Monday night's Milwaukee Admirals hockey game my dad rode the Zamboni. The pictures aren't the greatest, but it is easy to see that he had a "cool" time. This event was a birthday gift to my dad from his brother-in-law John and sister-in-law Mary. Thanks, Uncle John and Aunt Mary.
Monday, March 5, 2007
Snow, snow, snow
Even though it is now March, the snow keeps coming both at home and in Door County.
Work on the floor installation in Door County should be wrapping up by now, but it's not. About 18 inches of snow fell over a little more than a week's time. The road to the house wasn't plowed, so the contractor could not get in. Now that the road is plowed, hopefully the contractor will get back on schedule.
Progress on the bathroom at home continues despite more than 12 inches of snow on the ground here. The bathroom was gutted during the February workday. Now installed are a new tub, new ceramic tile in the shower, a new ceramic tile floor, and a new toilet. It looks so clean and shiny. (My mom's sister Mary, Helen from my mom's work, and my mom all tried to clean up the old bathroom and make it look nice, but it was hopeless.)
About 12 inches of snow fell at home in one weekend. In spite of the snowfall my mom, Muriel and I attended a bridal shower for my cousin that same weekend. Also, the neighbors here were very helpful in removing the heaviest snow that fell. My parents, Mark, the kids, and I were very thankful for that!
Their grandchildren stayed overnight at my parents house the next weekend. It was Kyle's first overnight away from Mark and I. The kids ate Chinese food for dinner. The next morning they had pancakes, went to church, and played in the snow.
Mark and I got to spend an evening out which was very nice. We saw the play "A Few Good Men" with friends Brad and Gabriela. Appearing in the play after a 23 year leave from the theater was our friend Jeff. He performed well! Mark and I also enjoyed dinner out before the play. After we dropped off the kids, my mom mentioned that this could be our anniversary celebration. Thanks, Mom and Dad! You didn't have to make it up to us. (Our 15th wedding anniversary was the same day my dad had his first trip to the hospital. It was also the day my mom found out she wouldn't be able to use her right arm for three weeks following surgery.)
My dad has had a total of four chemotherapy treatments so far. He has had hardly any side effects. I think he is especially thankful that he hasn't been nauseous. For about two days after the treatment he is more tired than normal. I think on those days he's napping more than Tilly!
My dad and I have also been busy with the tax business. My dad and I decided that I would help out with preparing taxes this year for his clients. I have learned much and enjoy working with my dad.
Work on the floor installation in Door County should be wrapping up by now, but it's not. About 18 inches of snow fell over a little more than a week's time. The road to the house wasn't plowed, so the contractor could not get in. Now that the road is plowed, hopefully the contractor will get back on schedule.
Progress on the bathroom at home continues despite more than 12 inches of snow on the ground here. The bathroom was gutted during the February workday. Now installed are a new tub, new ceramic tile in the shower, a new ceramic tile floor, and a new toilet. It looks so clean and shiny. (My mom's sister Mary, Helen from my mom's work, and my mom all tried to clean up the old bathroom and make it look nice, but it was hopeless.)About 12 inches of snow fell at home in one weekend. In spite of the snowfall my mom, Muriel and I attended a bridal shower for my cousin that same weekend. Also, the neighbors here were very helpful in removing the heaviest snow that fell. My parents, Mark, the kids, and I were very thankful for that!
Their grandchildren stayed overnight at my parents house the next weekend. It was Kyle's first overnight away from Mark and I. The kids ate Chinese food for dinner. The next morning they had pancakes, went to church, and played in the snow.
Mark and I got to spend an evening out which was very nice. We saw the play "A Few Good Men" with friends Brad and Gabriela. Appearing in the play after a 23 year leave from the theater was our friend Jeff. He performed well! Mark and I also enjoyed dinner out before the play. After we dropped off the kids, my mom mentioned that this could be our anniversary celebration. Thanks, Mom and Dad! You didn't have to make it up to us. (Our 15th wedding anniversary was the same day my dad had his first trip to the hospital. It was also the day my mom found out she wouldn't be able to use her right arm for three weeks following surgery.)
My dad has had a total of four chemotherapy treatments so far. He has had hardly any side effects. I think he is especially thankful that he hasn't been nauseous. For about two days after the treatment he is more tired than normal. I think on those days he's napping more than Tilly!
My dad and I have also been busy with the tax business. My dad and I decided that I would help out with preparing taxes this year for his clients. I have learned much and enjoy working with my dad.
Thursday, February 22, 2007
Work gets done in Door County
Last week Dad didn't have a chemotherapy treatment because his platelets were too low. He referred to the low platelets as his "get out of jail free card". They left for Door County on Thursday afternoon following Mom's PT for her elbow.
My parents were joined in Door County by my Aunt Mary and Uncle John. Also, Tom and Jan and the spouse of another Rexnord co-worker helped out on Saturday. Stairs were built to replace the extension ladder! (That's Tom coming down the new stairs.) Upper kitchen cabinets were installed.
On Monday, the hardwood floor installation began. My dad is helping out the contractor my parents hired to put in the floor. A portion of the wood was milled from trees cleared from the building site.
Back at home new flooring was installed in the entry hall and down the basement stairs. It looks great!
My parents were joined in Door County by my Aunt Mary and Uncle John. Also, Tom and Jan and the spouse of another Rexnord co-worker helped out on Saturday. Stairs were built to replace the extension ladder! (That's Tom coming down the new stairs.) Upper kitchen cabinets were installed.On Monday, the hardwood floor installation began. My dad is helping out the contractor my parents hired to put in the floor. A portion of the wood was milled from trees cleared from the building site.
Back at home new flooring was installed in the entry hall and down the basement stairs. It looks great!
Thursday, February 15, 2007
Help on the homefront
Following the second chemotherapy treatment, my parents had a houseful of help! My dad's brother-in-law put together a work crew of family and friends to help get some projects done at my parents' house. Some significant demolition work was done, so we'll keep you updated as that work progresses. Thanks to all who made time in their busy schedules to help out, especially to John for organizing everything.
On Sunday we received the sad news that a former Associate Paster of our parish died of a massive heart attack at age 41. On St. Valentine's Day my family along with my parents attended Fr. Dave's funeral. Fr. Dave's obituary on FOX6 can be seen here. The obituary from the Milwaukee Journal Sentinel about Fr. Dave can be read here.
On Sunday we received the sad news that a former Associate Paster of our parish died of a massive heart attack at age 41. On St. Valentine's Day my family along with my parents attended Fr. Dave's funeral. Fr. Dave's obituary on FOX6 can be seen here. The obituary from the Milwaukee Journal Sentinel about Fr. Dave can be read here.
Wednesday, February 7, 2007
Getting back to Door County
The first chemotherapy treatment left my dad tired Friday, Saturday and most of Sunday. In spite of that, my parents did manage to get up to Door County on Saturday. They installed a ceiling fan and did some painting!
Friday, February 2, 2007
Chemotherapy starts
Dad had his first chemotherapy treatment yesterday. My mom went with him. Today he was very tired.
My dad and mom also saw Dr. Ritch yesterday. Dad will be seeing him once a month. Dr. Ritch had a different pathologist look at the slides of the samples taken during my dad's surgery. Dr. Ritch's pathologist found the tumor in the gallbladder to be benign! Also, the samples of the studding in the peritineum were all negative for cancer, too! Because the lymph nodes have cancer in them, however, the prognosis hasn't changed. It is still metastatic terminal cancer.
(A dictionary of cancer terms is available at the National Cancer Institute Website.)
Also, my mom saw the surgeon about her elbow recently. The bad news is that her injury extended to both sides of the elbow. Only one side was repaired during the surgery. When Mom asked the doctor why he didn't fix both sides, he explained that both sides can't be repaired at the same time. That type of repair would lead to a stiff elbow. For now she is limited to lifting no more than 10 pounds, so she can still lift Tilly! Mom will begin physical therapy next week.
My dad and mom also saw Dr. Ritch yesterday. Dad will be seeing him once a month. Dr. Ritch had a different pathologist look at the slides of the samples taken during my dad's surgery. Dr. Ritch's pathologist found the tumor in the gallbladder to be benign! Also, the samples of the studding in the peritineum were all negative for cancer, too! Because the lymph nodes have cancer in them, however, the prognosis hasn't changed. It is still metastatic terminal cancer.
(A dictionary of cancer terms is available at the National Cancer Institute Website.)
Also, my mom saw the surgeon about her elbow recently. The bad news is that her injury extended to both sides of the elbow. Only one side was repaired during the surgery. When Mom asked the doctor why he didn't fix both sides, he explained that both sides can't be repaired at the same time. That type of repair would lead to a stiff elbow. For now she is limited to lifting no more than 10 pounds, so she can still lift Tilly! Mom will begin physical therapy next week.
Wednesday, January 31, 2007
Dad has a Port-a-Cath®
Today my dad had the Port-a-Cath® (also called a port) put in. The device was surgically inserted under the skin in the upper chest. The surgery was minor and was performed under local anesthesia.
Monday, January 29, 2007
Baseline testing
Testing this morning went fine. Dad was frustrated to be stuck five times for the blood tests, but his days of multiple sticks are numbered. He scheduled to have a Port-a-Cath® (also called a port) put in on Wednesday. A port is a small device placed under the skin. It empties into a blood vessel and makes it easier to give chemotherapy and to take blood for tests. It requires no special maintenance and is completely internal, so swimming and bathing are not a problem.
Tuesday, January 23, 2007
Dad's birthday
Today my dad turned 60!The morning began with surprise gifts from my dad's former co-workers. This balloon with the dancing frogs was one of his gifts. He enjoyed all of the gifts very much and was overwhelmed by how many people cared enough to contribute to the gifts.
Of course, he has also received many other gifts and cards. Thank you all so much for taking the time to send them.
The afternoon was spent at the oncologist's office. My dad had his first appointment with Dr. Paul Ritch at the Medical College of Wisconsin. My mom, brother, and I also attended the appointment. There was no more bad news. Dr. Ritch restated information he received from Elmbrook Hospital records. The cancer is in the pancreas, gallbladder, peritoneum, and the lymph nodes. Dr. Ritch did mention that my dad has likely had this cancer for years.
Pancreatic cancer almost always has no symptoms until it is in the 3rd or 4th stage. This is my dad's case. More information about pancreatic cancer can be found on the PanCAN Website.
On Monday my dad will have preliminary testing done before starting chemotherapy on Thursday, February 1. This testing includes both blood tests and another CT scan with a higher resolution machine than was used at Elmbrook Hospital. The results of these test will be used to establish a baseline before treatment is begun.
The chemotherapy regimen will begin with seven consecutive treatments once per week. This will be followed by one week off. During the week off blood work will be redone and another CT scan will be done. We hope the chemotherapy will prolong and improve his remaining time with us. There is no curative treatment available because the blood flow goes through the tumor.
Thursday, January 18, 2007
Home from the hospital
Tuesday, we brought my dad home from the hospital. Despite the cold weather it appears that all of the plants and flowers survived the move. Now my parents house is full of greenery and blossoms!
My dad asked me on Monday to send a short, funny, cryptic email. Below is the prognosis for those of you who didn't understand or have more questions.
My dad is facing his toughest fight yet against cancer. His pancreatic cancer has metastasized into the peritoneum and is also in the lymph node. There is no curative treatment available. My family and I are hopeful the chemotherapy treatment my dad has chosen to undergo will slow the progress of the cancer and shrink the tumors.
Next Tuesday, my dad will have his first appointment with an oncologist at the Medical College of Wisconsin. It is also his 60th birthday.
My family and I are hopeful that with chemotherapy we will all be blessed with many more months of my dad's sarcasm, wit and strong convictions. (You may not want to get him started ranting about George Bush or the Chicago Bears.)
-Michelle
My dad asked me on Monday to send a short, funny, cryptic email. Below is the prognosis for those of you who didn't understand or have more questions.
My dad is facing his toughest fight yet against cancer. His pancreatic cancer has metastasized into the peritoneum and is also in the lymph node. There is no curative treatment available. My family and I are hopeful the chemotherapy treatment my dad has chosen to undergo will slow the progress of the cancer and shrink the tumors.
Next Tuesday, my dad will have his first appointment with an oncologist at the Medical College of Wisconsin. It is also his 60th birthday.
My family and I are hopeful that with chemotherapy we will all be blessed with many more months of my dad's sarcasm, wit and strong convictions. (You may not want to get him started ranting about George Bush or the Chicago Bears.)
-Michelle
Tuesday, January 16, 2007
The third strike
Oh, somewhere in this favored land the sun is shining bright,
The band is playing somewhere, and somewhere hearts are light,
And somewhere men are laughing, and little children shout;
But there is no joy in Mudville. . .
Strike one, 1979, testicular cancer
Strike two, 1998, prostate cancer
Strike three, 2007, pancreatic cancer
My family and I are bringing Dad home from the hospital in the next few days. We hope to have a year full of sunshine, bands playing, light hearts, laughter, and children shouting.
On second thought. . . we actually don't want the whole year full of children shouting.
Michelle
Daughter of Philippe
p.s. I guess the little plastic boat wasn't the problem after all.
The band is playing somewhere, and somewhere hearts are light,
And somewhere men are laughing, and little children shout;
But there is no joy in Mudville. . .
Strike one, 1979, testicular cancer
Strike two, 1998, prostate cancer
Strike three, 2007, pancreatic cancer
My family and I are bringing Dad home from the hospital in the next few days. We hope to have a year full of sunshine, bands playing, light hearts, laughter, and children shouting.
On second thought. . . we actually don't want the whole year full of children shouting.
Michelle
Daughter of Philippe
p.s. I guess the little plastic boat wasn't the problem after all.
Sunday, January 14, 2007
Hope for tomorrow
Dear family and friends of my dad,
My dad has had a busy weekend full of visitors (including his dog Tilly), phone chats , and deliveries of plants and flowers. Thank you all for caring so much. Our family appreciates your support and prayers.
In addition to the intravenous nutrition, my dad is eating well. He is on medication to control nausea and has not vomited since arriving at Elmbrook Hospital. His recovery from the surgery on Friday continues to progress well. The pathology report with the results of the biopsies is expected on Monday.
Going into tomorrow we have much hope. My dad is in good spirits. We will keep you all posted.
Sincerely,
Michelle
My dad has had a busy weekend full of visitors (including his dog Tilly), phone chats , and deliveries of plants and flowers. Thank you all for caring so much. Our family appreciates your support and prayers.
In addition to the intravenous nutrition, my dad is eating well. He is on medication to control nausea and has not vomited since arriving at Elmbrook Hospital. His recovery from the surgery on Friday continues to progress well. The pathology report with the results of the biopsies is expected on Monday.
Going into tomorrow we have much hope. My dad is in good spirits. We will keep you all posted.
Sincerely,
Michelle
Saturday, January 13, 2007
It's pancreatic cancer
Hi,
Phil had surgery this morning. The surgery itself went well, but it brings with it news that is disheartening. The doctors are pretty sure that he has pancreatic cancer. We will know for sure after we get the results of the biopsies, probably on Monday.
Although pancreatic cancer isn't good, there are some promising treatments if it is caught early enough. We don't know if we've caught it early enough and we don't know what treatment options are available. We will know more after we speak with the oncologist.
Phil was pretty tired when I saw him this evening, but he has been up and about walking a few times today. He was also cracking some jokes. They are feeding him liquid nutrition intravenously, and that should help him feel better. He has lost a fair amount of weight over the last couple of months.
Phil and Judy are gearing up together to find the doctor, hospital, and procedures they need to fight the cancer and get a positive outcome. I'm sure they can use your prayers and support.
Michelle and Judy took Tilly to the vet today so that she can get clearance to visit Phil at the hospital. We may take her to see him tomorrow or the next day.
We will keep you posted.
-Mark
Phil had surgery this morning. The surgery itself went well, but it brings with it news that is disheartening. The doctors are pretty sure that he has pancreatic cancer. We will know for sure after we get the results of the biopsies, probably on Monday.
Although pancreatic cancer isn't good, there are some promising treatments if it is caught early enough. We don't know if we've caught it early enough and we don't know what treatment options are available. We will know more after we speak with the oncologist.
Phil was pretty tired when I saw him this evening, but he has been up and about walking a few times today. He was also cracking some jokes. They are feeding him liquid nutrition intravenously, and that should help him feel better. He has lost a fair amount of weight over the last couple of months.
Phil and Judy are gearing up together to find the doctor, hospital, and procedures they need to fight the cancer and get a positive outcome. I'm sure they can use your prayers and support.
Michelle and Judy took Tilly to the vet today so that she can get clearance to visit Phil at the hospital. We may take her to see him tomorrow or the next day.
We will keep you posted.
-Mark
Thursday, January 11, 2007
Problem lies in the pancreas
Again, many thanks for the phone calls and visits to my dad thus far. Also, thanks to those of you who have helped out my mom with rides and meals. Please continue to forward these emails to anyone interested.
This morning (Thursday, January 11) another test was run which ruled out an obstruction. After further review, the internist, surgeon, and gastroenterologists all agree the problem lies with my dad's pancreas. The large cyst behind his stomach is believed to be part of his pancreas. It will be biopsied and his gall bladder removed during laparoscopic surgery. His surgery is scheduled for 7:30 tomorrow morning. The three possible problems with my dad's pancreas are pancreatitis, a benign pancreatic cyst, or a malignant pancreatic cyst.
My dad recovers slowly from general anesthesia, and he doesn't expect to feel well enough for visitors on Friday. He would welcome visitors again beginning on Saturday. He will be staying in the hospital several days.
Please keep my dad and our family in your prayers.
Thank you,
Michelle and Mark
p.s. I haven't seen the small plastic boat, but maybe I just need to look a little more closely at the pictures from the upper GI scope.
This morning (Thursday, January 11) another test was run which ruled out an obstruction. After further review, the internist, surgeon, and gastroenterologists all agree the problem lies with my dad's pancreas. The large cyst behind his stomach is believed to be part of his pancreas. It will be biopsied and his gall bladder removed during laparoscopic surgery. His surgery is scheduled for 7:30 tomorrow morning. The three possible problems with my dad's pancreas are pancreatitis, a benign pancreatic cyst, or a malignant pancreatic cyst.
My dad recovers slowly from general anesthesia, and he doesn't expect to feel well enough for visitors on Friday. He would welcome visitors again beginning on Saturday. He will be staying in the hospital several days.
Please keep my dad and our family in your prayers.
Thank you,
Michelle and Mark
p.s. I haven't seen the small plastic boat, but maybe I just need to look a little more closely at the pictures from the upper GI scope.
CT scan & upper GI scope results
Thank you all for patiently waiting for this update, it's been a little hectic around here. We would like to send a big thank you for everyone that has called, visited and sent flowers. I can see a positive change in his attitude after each friendly interaction. So here is the deal since the last email:
On Tuesday morning Little Papa (see below if you have questions) was woken up and carted down to the radiology department for a CT scan of his "guts". However, there was a bit of confusion around his allergy to the dye they use and they had to reschedule the procedure for 6:30pm. He was in such a "good mood" as I walked in at 8:00 just as he was being returned from Radiology.
Later that morning the GI specialist (He's actually my parents neighbor) performed an upper GI scope. This very quick procedure takes a camera into the food pipe, stomach and the first part of the small bowel looking for irregularities. The specialist returned to the waiting room after five minutes and debriefed my mother and I while my dad was in the background telling the nurse and everyone else how much he loved them. The specialist found a pool of acid and bile in his stomach along with a small plastic boat floating around that he removed. He also found additional liquid at the entrance to the small bowel.
On, Wednesday morning we received the results from the CT scan. The scan showed that he had a few small gallstones in his gallbladder, he has a large cyst behind his stomach and a few cysts inside his pancreas. So what does all this mean . .
Let me start it out with they're not sure. The GI specialist's initial thought was since there is backup of fluid in the stomach and entrance to the small bowel there must be an obstruction somewhere further down that the scope cannot reach. However, they consulted a surgeon and he thought that since the dye used for the CT scan went all the through to the colon there is probably not an obstruction. So, now they are all a little puzzled. Both the GI specialist and surgeon talked and agreed the best course of action would be to schedule a exploratory laparoscopic surgery for Friday. This would give them a chance to address the gallstones by removing the gallbladder and look into the small bowel and the pancreas.
So that's where we stand.
Michael
On Tuesday morning Little Papa (see below if you have questions) was woken up and carted down to the radiology department for a CT scan of his "guts". However, there was a bit of confusion around his allergy to the dye they use and they had to reschedule the procedure for 6:30pm. He was in such a "good mood" as I walked in at 8:00 just as he was being returned from Radiology.
Later that morning the GI specialist (He's actually my parents neighbor) performed an upper GI scope. This very quick procedure takes a camera into the food pipe, stomach and the first part of the small bowel looking for irregularities. The specialist returned to the waiting room after five minutes and debriefed my mother and I while my dad was in the background telling the nurse and everyone else how much he loved them. The specialist found a pool of acid and bile in his stomach along with a small plastic boat floating around that he removed. He also found additional liquid at the entrance to the small bowel.
On, Wednesday morning we received the results from the CT scan. The scan showed that he had a few small gallstones in his gallbladder, he has a large cyst behind his stomach and a few cysts inside his pancreas. So what does all this mean . .
Let me start it out with they're not sure. The GI specialist's initial thought was since there is backup of fluid in the stomach and entrance to the small bowel there must be an obstruction somewhere further down that the scope cannot reach. However, they consulted a surgeon and he thought that since the dye used for the CT scan went all the through to the colon there is probably not an obstruction. So, now they are all a little puzzled. Both the GI specialist and surgeon talked and agreed the best course of action would be to schedule a exploratory laparoscopic surgery for Friday. This would give them a chance to address the gallstones by removing the gallbladder and look into the small bowel and the pancreas.
So that's where we stand.
Michael
Tuesday, January 9, 2007
Second trip to the hospital
Good evening all: I hope this email reaches everyone with a good start to 2007. Here at the Ortiz family we are having a little drama, but heck we’re going to make it. So here is the status as of today.
Judy or mom as some of else like to call her- She went to the doctor this morning and had the stitches removed from her elbow. Good news! The doc says she is healing well and will be able to start using it after another week. The family had fun comparing surgical scars today.
Dad or little papa as I like to call him these days- Tough day for the little guy. After some good days of eating and trying to regain weight, last night he started vomiting again. Unfortunately dehydration is a concern so he went to hospital and they pump him full of fluids. He looks and feels good when I left him tonight. Tomorrow they are planning some early morning test and therefore he gets to spend another night in the hospital. Not to worry though, because the tests are scheduled for the AM they won’t let him partake in the scrumptious hospital food. Awe shucks. As I left him tonight little papa was getting prepared for an (hopefully I’ll get this right) upper GI and a CT scan in the AM. His preparatory cocktail didn’t sound as good as the smooth whiskey snifter I rang in the new year with, but he is very excited to get the results and find a solution to his #2 being like a #1. Sorry for that and hope I didn’t make anyone sick, but it sounded funny to me.
So that’s the update and I’ll let you know when we get more info. As usual little papa loves to talk to people on the phone and hear some positive reinforcement about his treatment.
Michael
Judy or mom as some of else like to call her- She went to the doctor this morning and had the stitches removed from her elbow. Good news! The doc says she is healing well and will be able to start using it after another week. The family had fun comparing surgical scars today.
Dad or little papa as I like to call him these days- Tough day for the little guy. After some good days of eating and trying to regain weight, last night he started vomiting again. Unfortunately dehydration is a concern so he went to hospital and they pump him full of fluids. He looks and feels good when I left him tonight. Tomorrow they are planning some early morning test and therefore he gets to spend another night in the hospital. Not to worry though, because the tests are scheduled for the AM they won’t let him partake in the scrumptious hospital food. Awe shucks. As I left him tonight little papa was getting prepared for an (hopefully I’ll get this right) upper GI and a CT scan in the AM. His preparatory cocktail didn’t sound as good as the smooth whiskey snifter I rang in the new year with, but he is very excited to get the results and find a solution to his #2 being like a #1. Sorry for that and hope I didn’t make anyone sick, but it sounded funny to me.
So that’s the update and I’ll let you know when we get more info. As usual little papa loves to talk to people on the phone and hear some positive reinforcement about his treatment.
Michael
Sunday, January 7, 2007
The start of it all
The following is an email from my Aunt Mary which describes the initial situation:
Thought I would update you on the Ortiz's. Phil is still holding down his food and his system seems to be working okay. However, he is very weak and depressed. He called the priest to give him the annointing of the sick and Fr. Dick Aiken came today. He annointed both of them since Judy is trying to recover from the surgery on her arm. I think it is important for him to get a more positive outlook. He seems to be resigned to dying and that is not good. Anything any of you can do to cheer him up would be helpful. Judy cannot cook so Michelle and Michael are helping out. We have taken some food over there also.
Mary (Judy's sister)
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